GI Update
We had our GI appointment Friday and it went as I expected. I was surprised I liked the doctor so much. From the name I couldn't tell if it was a man or woman. I was relieved it was a young (hot, as Bryan said) woman. I normally prefer male doctors but when breastfeeding is involved I prefer a woman, although there are plenty of women not very pro-breastfeeding.
She took history of my eating habits, how often/long Julian eats, what his elimination is like, his mood, other symptoms etc. She did a physical exam and said he has great skin, repeatedly kept saying how content he was (not relevant but good to hear). She said he is really healthy and growing great. Never had doubts he was growing. And one thing I learned is you never get tired of hearing how healthy and content your baby is!
She tested his stool and said whatever I've been doing is helping because while there was traces of blood (not visible to the eye in this particular diaper), normally it reacts by turning bright blue but his was very minimal, or something like that. Her point was, he isn't that severe. She confirmed there are no bacteria or parasites, and this is allergic colitis. Is it wrong I was praying for bacteria that could easily be taken care of by a magic pill and I could go on my merry eating way? No such luck.
She said she did not feel he needs any kind of medication or evasive testing, formula isn't necessary now since he is thriving so well and its "advantageous to both of us that I keep breastfeeding." Yay, what I wanted to hear.
She instructed me to do diet elimination for 8 weeks before we re-evaluate. She said NOT to worry about blood or mucous during the 8 weeks because it will require at least 8 weeks to heal. And if during the 8 weeks, his stool gets back to the proper seedy consistency and remains consistently good, NOT to introduce any foods until AFTER the 8 weeks. (Patience isn't one of my stronger characteristics!)
The diet she recommended is also what I expected. She gave me a list to exclude (dairy/soy/eggs/corn/wheat/peanuts) She said meats, vegetables, fruits and spices are OK. Also anything rice, encouraged me to drink Rice Milk since it's vital for breastfeeding moms to get our calcium and proper nutrients. She didn't feel I need to be as extreme as I am as I'm not doing beef, pork, chicken or a variety of fruits/veg/spices or worry about all the cross-contamination as in the rice milk.
Regardless of what she said about the diet, I am going to stay more hardcore than what she recommended, just because I don't want to go 8 weeks with no improvement then have to eliminate more and do another 8 weeks. I rather get it all out of the way up front, especially since I've already started. I've been doing diet elimination for sometime but I keep learning I wasn't very good at it (I.e. the probiotics I was using to help heal his gut contained ingredients he shouldn't have, most likely my pre-natals did too, I was consuming corn without knowing, the list goes on..) so my official "start date" of my 8 week diet is 10.22. Hopefully I'll be able to challenge in new foods in 8 weeks. I was eating many more things before anyway as you know and kept seeing reactions which is why I've eliminated everything. The day after I ate oats and barley, he was really bad. Got rid of those. The day after I ate pork and broccoli he was really bad, got rid of those. Now I did add rice back because I learned that Rice Milk is risky, especially since it contains other ingredients and the brands are notorious for cross-contamination. So I'm going to blame Rice Milk for our rice issues and assume pure rice is OK. Having rice opens up many more options. But if there are still issues that is the next thing to go. Surprisingly reactions to rice are pretty common despite many doctors denying rice would cause reactions. Yea, tell that to the mom's on my POFAK forum who only learned their babies had food allergies once they started solids and had to go to the ER within 2 hours of starting their first solid...rice cereal.
Anyway...so, I'm staying on my limited diet of all-natural turkey, sweet and yellow potatoes, yellow and green squash, rice (including rice oil, rice flour, rice syrup, rice pasta, rice cakes but no rice milk yet) sea salt, olive oil and pure cane sugar crystals. Rice milk might be one of my first trials if we ever get Julian baselined again.
Now here is where I get all pessimistic:
I've learned a lot since joining the POFAK group. Maybe too much and it's causing extreme paranoia. Bryan thinks I'm not being optimistic, and maybe it is my natural tendency to look at the worst case scenario, but I like to think I'm just getting informed of other *possible* outcomes. I know doctors are the "medically trained professionals" but I never have much faith in them and these parents have experienced it and are dealing with it first hand. That has more weight in my book than what any doctor may have "read" about something. Another strike against us, I've recently learned there are some peanut/dairy/soy allergies in the family. So guess we have some sensitivities floating around. I didn’t know this when all the doctors asked if we have anything like this in our family, so I said no. Maybe they would have taken more notice if they knew there was a history.
Looking back, I'm unhappy with our visit to the allergist. I've since learned that allergy tests on a 2 month old are never accurate. Usually they will always test negative until they are at least 1 year old. Never was that mentioned to me that could be the case. Why bother testing then, or at least tell me that it may not be accurate. I feel I was led to believe he didn't have food allergies. It was implied this was a very common infant dairy/soy protein intolerance and most likely he'd outgrow it by 6 months, maybe a year. I've learned on the forums, that MOST of these kids on here test negative to food allergies but have severe reactions (even at 5 years old!) I was never explained the difference between non-IgE and IgE reactions and that non-IgE will never show up on a test but it's still a "food allergy." That's what scares me the most is that this can go on for years and get progressively worse. Now I'm hearing a year is being optimistic especially if multiple foods are involved. In the doctor’s defense, I'm sure he sees a million cases a year where it is something minor like that, but I still feel he could have prepared me for the other side of this.
The GI doc said once the 8 weeks are up, if all is well we can introduce solids (rice cereal) to Julian since he'll be 5 months old. I didn't get into it with her yet that I will not introduce solids before 6 months. Never planned to, food allergy or no food allergy as there are many benefits to being exclusively breastfeed for at least 6 months. (It used to be recommended to introduce solids anywhere between 4 – 6 months but it has since been updated although many doctors have yet to get on board. Don’t believe me? Even the American Academy of Pediatrics says so and normally they are the last people to agree with breastfeeding practices.) “Exclusive breastfeeding is ideal nutrition and sufficient to support optimal growth and development for approximately the first 6 months after birth” and “In the first 6 months, water, juice, and other foods are generally unnecessary for breastfed infants” And here is a good rundown on the benefits for delaying solids. Depending on how things are going, I may even hold off longer and follow the AAP 8 month old (sometimes 12 month) recommendation for kid’s with signs of food allergies. (So Mom, don’t even bother trying to sneak him food while I’m not looking!) I will however let him get used to eating from bowls and spoons at 6 months by giving him breast milk or water in bowls, regardless if he's getting solids or not to prevent him from developing a gag reflex. That's the last thing we need!
Long story short, I'm still where we were at before Friday. I did like the fact she kept driving home waiting the 8 weeks because I am way too impatient with all this.
So there you have it. We're still in the same situation. I can't help feeling I got shafted in this breastfeeding thing. I thought getting past the first extremely painful 8 weeks would be our biggest hurdle. Amazing I've still managed to turn into a borderline breast feeding Nazi. I know I should be thankful he is so healthy and if food allergies are our only problem then we are very fortunate.
A few things this diet has taught me...
1. If you are desperate enough for something sweet, 1/2 cup mashed sweet potato mixed with 1/8 cup pure cane sugar spread warm over Lundberg Brown Rice Organic Rice Cakes are quite tasty.
2. 1/4 cup olive oil, 1/2 cup pure cane sugar, 1/2 tsp baking soda, 1/2 tsp sea salt and 1 to 1.25 cups rice flour does NOT make good sugar cookies no matter how desperate you are
3. Nobody will ever remember you are on such a strict diet
4. People will always try to suggest possible things for you to eat
5. You can get very grumpy and resentful of others being able to eat anything
6. But one look at your baby's face makes it worth it
7. Most Dr's don't have a clue unless they have experienced or had more then one patient with "complicated" problems.
8. That puts a lot of pressure on you to figure all this out.
9. And that is a lot of pressure.
10. Again, one look at your baby makes it all worth it.
She took history of my eating habits, how often/long Julian eats, what his elimination is like, his mood, other symptoms etc. She did a physical exam and said he has great skin, repeatedly kept saying how content he was (not relevant but good to hear). She said he is really healthy and growing great. Never had doubts he was growing. And one thing I learned is you never get tired of hearing how healthy and content your baby is!
She tested his stool and said whatever I've been doing is helping because while there was traces of blood (not visible to the eye in this particular diaper), normally it reacts by turning bright blue but his was very minimal, or something like that. Her point was, he isn't that severe. She confirmed there are no bacteria or parasites, and this is allergic colitis. Is it wrong I was praying for bacteria that could easily be taken care of by a magic pill and I could go on my merry eating way? No such luck.
She said she did not feel he needs any kind of medication or evasive testing, formula isn't necessary now since he is thriving so well and its "advantageous to both of us that I keep breastfeeding." Yay, what I wanted to hear.
She instructed me to do diet elimination for 8 weeks before we re-evaluate. She said NOT to worry about blood or mucous during the 8 weeks because it will require at least 8 weeks to heal. And if during the 8 weeks, his stool gets back to the proper seedy consistency and remains consistently good, NOT to introduce any foods until AFTER the 8 weeks. (Patience isn't one of my stronger characteristics!)
The diet she recommended is also what I expected. She gave me a list to exclude (dairy/soy/eggs/corn/wheat/peanuts) She said meats, vegetables, fruits and spices are OK. Also anything rice, encouraged me to drink Rice Milk since it's vital for breastfeeding moms to get our calcium and proper nutrients. She didn't feel I need to be as extreme as I am as I'm not doing beef, pork, chicken or a variety of fruits/veg/spices or worry about all the cross-contamination as in the rice milk.
Regardless of what she said about the diet, I am going to stay more hardcore than what she recommended, just because I don't want to go 8 weeks with no improvement then have to eliminate more and do another 8 weeks. I rather get it all out of the way up front, especially since I've already started. I've been doing diet elimination for sometime but I keep learning I wasn't very good at it (I.e. the probiotics I was using to help heal his gut contained ingredients he shouldn't have, most likely my pre-natals did too, I was consuming corn without knowing, the list goes on..) so my official "start date" of my 8 week diet is 10.22. Hopefully I'll be able to challenge in new foods in 8 weeks. I was eating many more things before anyway as you know and kept seeing reactions which is why I've eliminated everything. The day after I ate oats and barley, he was really bad. Got rid of those. The day after I ate pork and broccoli he was really bad, got rid of those. Now I did add rice back because I learned that Rice Milk is risky, especially since it contains other ingredients and the brands are notorious for cross-contamination. So I'm going to blame Rice Milk for our rice issues and assume pure rice is OK. Having rice opens up many more options. But if there are still issues that is the next thing to go. Surprisingly reactions to rice are pretty common despite many doctors denying rice would cause reactions. Yea, tell that to the mom's on my POFAK forum who only learned their babies had food allergies once they started solids and had to go to the ER within 2 hours of starting their first solid...rice cereal.
Anyway...so, I'm staying on my limited diet of all-natural turkey, sweet and yellow potatoes, yellow and green squash, rice (including rice oil, rice flour, rice syrup, rice pasta, rice cakes but no rice milk yet) sea salt, olive oil and pure cane sugar crystals. Rice milk might be one of my first trials if we ever get Julian baselined again.
Now here is where I get all pessimistic:
I've learned a lot since joining the POFAK group. Maybe too much and it's causing extreme paranoia. Bryan thinks I'm not being optimistic, and maybe it is my natural tendency to look at the worst case scenario, but I like to think I'm just getting informed of other *possible* outcomes. I know doctors are the "medically trained professionals" but I never have much faith in them and these parents have experienced it and are dealing with it first hand. That has more weight in my book than what any doctor may have "read" about something. Another strike against us, I've recently learned there are some peanut/dairy/soy allergies in the family. So guess we have some sensitivities floating around. I didn’t know this when all the doctors asked if we have anything like this in our family, so I said no. Maybe they would have taken more notice if they knew there was a history.
Looking back, I'm unhappy with our visit to the allergist. I've since learned that allergy tests on a 2 month old are never accurate. Usually they will always test negative until they are at least 1 year old. Never was that mentioned to me that could be the case. Why bother testing then, or at least tell me that it may not be accurate. I feel I was led to believe he didn't have food allergies. It was implied this was a very common infant dairy/soy protein intolerance and most likely he'd outgrow it by 6 months, maybe a year. I've learned on the forums, that MOST of these kids on here test negative to food allergies but have severe reactions (even at 5 years old!) I was never explained the difference between non-IgE and IgE reactions and that non-IgE will never show up on a test but it's still a "food allergy." That's what scares me the most is that this can go on for years and get progressively worse. Now I'm hearing a year is being optimistic especially if multiple foods are involved. In the doctor’s defense, I'm sure he sees a million cases a year where it is something minor like that, but I still feel he could have prepared me for the other side of this.
The GI doc said once the 8 weeks are up, if all is well we can introduce solids (rice cereal) to Julian since he'll be 5 months old. I didn't get into it with her yet that I will not introduce solids before 6 months. Never planned to, food allergy or no food allergy as there are many benefits to being exclusively breastfeed for at least 6 months. (It used to be recommended to introduce solids anywhere between 4 – 6 months but it has since been updated although many doctors have yet to get on board. Don’t believe me? Even the American Academy of Pediatrics says so and normally they are the last people to agree with breastfeeding practices.) “Exclusive breastfeeding is ideal nutrition and sufficient to support optimal growth and development for approximately the first 6 months after birth” and “In the first 6 months, water, juice, and other foods are generally unnecessary for breastfed infants” And here is a good rundown on the benefits for delaying solids. Depending on how things are going, I may even hold off longer and follow the AAP 8 month old (sometimes 12 month) recommendation for kid’s with signs of food allergies. (So Mom, don’t even bother trying to sneak him food while I’m not looking!) I will however let him get used to eating from bowls and spoons at 6 months by giving him breast milk or water in bowls, regardless if he's getting solids or not to prevent him from developing a gag reflex. That's the last thing we need!
Long story short, I'm still where we were at before Friday. I did like the fact she kept driving home waiting the 8 weeks because I am way too impatient with all this.
So there you have it. We're still in the same situation. I can't help feeling I got shafted in this breastfeeding thing. I thought getting past the first extremely painful 8 weeks would be our biggest hurdle. Amazing I've still managed to turn into a borderline breast feeding Nazi. I know I should be thankful he is so healthy and if food allergies are our only problem then we are very fortunate.
A few things this diet has taught me...
1. If you are desperate enough for something sweet, 1/2 cup mashed sweet potato mixed with 1/8 cup pure cane sugar spread warm over Lundberg Brown Rice Organic Rice Cakes are quite tasty.
2. 1/4 cup olive oil, 1/2 cup pure cane sugar, 1/2 tsp baking soda, 1/2 tsp sea salt and 1 to 1.25 cups rice flour does NOT make good sugar cookies no matter how desperate you are
3. Nobody will ever remember you are on such a strict diet
4. People will always try to suggest possible things for you to eat
5. You can get very grumpy and resentful of others being able to eat anything
6. But one look at your baby's face makes it worth it
7. Most Dr's don't have a clue unless they have experienced or had more then one patient with "complicated" problems.
8. That puts a lot of pressure on you to figure all this out.
9. And that is a lot of pressure.
10. Again, one look at your baby makes it all worth it.
posted by Julian at 11:57 AM
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